Adenoid Cystic Carcinoma Foundation Resource Center



They tried to tell me that I was alone.
Now, we have each other.
Nancy Whitman

We miss ya' Darlin'.


This is an old resource, created in 2000, to offer information about ACC. But, it fell victim to neglect and the information went stale. The dead links have been removed and you will find now only a few that will lead you to many other valuable resources and support groups.

Warmest regards and best wishes to all who come this way.

Dale Knipple
República de Panamá

A few good resources:

ACCF List-Server

The Adenoid Cystic Carcinoma Organization

The Rare Cancer Alliance

NORD. The National Organization for Rare Disorders, a 501(c)3 Non Profit, has put in place a way that interested parties can contribute directly to a research fund for a specific disease. Many of us have found ourselves frustrated by the lack of knowledge of ACC. It is now possible to change that. Working through an organization such as NORD, we can direct our contributions to the organization that will see it goes to help ACC directly.! They also maintain a confidential networking program. For more information go to the NORD Website, send e-mail to NORD, or telephone Toll-Free: (800) 999-6673.

Use this as a way to honor your friends and family. The contributions should be made to the ACC Research Fund at NORD. They are tax deductible and will be acknowledged. Our NORD initiative has already funded several ACC research projects.

Employer matching gifts and payroll deduction is available in many companies. Check with your Human Resources department. Make sure that you mention The Adenoid Cystic Carcinoma Research Fund on any donation. .

Join the caring, sharing members of our Adenoid Cystic Carcinoma Electronic Support Group Groups:


ADEN-CYST, at ACOR (Association of Cancer Online Resources).

Also available at ACOR is ADCC-MED which is dedicated to AdCC treatment and medication.



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Last updated 19 August 2008